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    • A quick intro: I am new here
    • :wave: I live in South Carolina and was dx'd in March of 02 with MS,, Sle, and Fibromyalgia. I am currently on Copaxone and numerous other meds, and have been on Cytoxin and steroids.I am a single mom juggling the everyday activities of life.I look forward to posting on this board. :wav
    • REMOVED I wondered if I could ask you a few questi...
    • REMOVED I wondered if I could ask you a few questions. I will try to give a brief history without my life story so you will know what my issues are.I have been recently diagnosed with pn with a tentative dx of Fibromyalgia. I'm not all that convinced about the Fibromyalgia but I do have m
    • no plaques... new symptoms
    • I am hoping that someone can help me keep my sanity...In October of 2002 I was visiting a friend out of state, on the day I was to leave I woke unable to use both hands, and the left side of my face partially paralized, after a week in a hospital they decided it might be MS, though MRI's sh
    • Misery - is this the world of hexing?
    • :eek: Ok since starting the doxy last Friday I think it was...I am so much worse. I only had eye issues...now I have all kinds of neurological stuff happening. I feel like my arm is being squeezed, my muscles are twitching like crazy, I cannot sleep to save my life...last night was miserable a
    • Has anyone with muscle and joint pain felt that th...
    • Has anyone with muscle and joint pain felt that their pain in their muscles and bones has gotten worse lately? I have spastic hemiparesis, I'm 13 and lately my muscles and bones have been KILLING me and I've had sharp abdominal pains that don't quit no matter what I do to remedy t
    • new tablets
    • :wave: we have had a documentary here in australia about some tablets which if taken with ms meds ie....betaforan has been helping some ms sufferers...has anyone heard of this before......
    • Serious side effects.
    • Hello everyone. My mother inlaw has recently been diagnosed with PD. She is having some pretty serious side effects(Hallucinations and confusion)are the most serious ones. Is this normal because of the med(Too high?)See is taking sinet(I think this is the way that it is spelled). Can anyone give
    • eye infections & dementia
    • Hi everyone .. Giz, in one of yur enlightening postings you mentioned eye infections as a part of Alzheimer's disease. My Mom has had chronic infected eyes for quite some time, Right now she is being treated with an anti allergy eye drop that costs a small fortune. YET, your argument that
    • Fighting the RSD Depression
    • Hi guys. It's been what seems like forever since my last post. I've been battling some serious depression as my pain has been increasing since my nerve block wore off on the 22nd and I have to wait until Jan 6th for my next block. Pain has been at an 8/9 every day. I'm also at
    • neurologist?
    • are you a doctor katie b? because you seem to have diagnosed everyone on here with dysautonomia.
    • mesiotemporal sclerosis
    • I saw a new neurologist last week, who has ordered an MRI (I think i've paid for one of those machines by now), and another regular EEG (only have had problems show up on 24 hour EEGs, so not sure if this will be a waste of time or not)- the EEG department is so backed up it may take 2 mont
    • could use some help/advice
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    • St Johns Wort
    • Has anyone tried this long term.I had on elast week and i flacked out.This weekend Im back on depakote and on second day as per usuall violent feelings, and face feels like a dead weight. Stareing into space and depressed. Worried will knock me back weeks/months.Things have been going so well, i
    • To tell a prospective employer - or not?
    • Just curious...I know the legal answer to this, but wondered how any of you have or would handle this question. You filled out an application, it asks if you have any disabilities, since you are not filing for disability- you say no. You then make it to the interview stage. You think you can han
    • For kchs1 - Thats GREAT news!
    • Hey doll! I am SO glad you checked in with us! I knew your mom was going to be visiting, and I wondered whether she was with you now and if that's why we hadn't heard from you. I try not to worry...it doesn't get us anywhere, does it? :nono: I am SO glad to hear you are doing wel
    • Diagnosed today-confused about one result
    • After three months since positive MRI with multiple lesions and futher tests including LP I have been diagnosed with MS(borderline secondary progressive from relapsing/remitting). Will be starting Avonex next week. However confused and concerned about LP results. Neuro stated that I had elevated
    • Thanks Ticker
    • Hi everyone,I posted a message last June about me and my two sons. At that time, I had been taking myself and my kids to doctors for over a year. Also, I had had two negative Elisa tests so I wasn't sure if it could by Lyme. If anyone is suspicious you might have Lyme, please read the po
    • Changes to the board, hmmm.
    • I see there is no more "quick reply", but we have font and format choices I hadn't noticed before. I always used to use "quick reply" because I would scroll back up to the other posts because I would forget things, can't do that anymore. I would have been happy with the change if we
    • I need two minutes to whine...
    • MS has ruined my life. I know I am very lucky. I am not in a wheelchair or without the use of my limbs. Social Security has not come through, but I can't work. I can't be a contributing member of society. I can't even keep a part time job because of the damn fatigue. I was a
    • Mice are cured of PD
    • An article in my local newspaper claims researchers have cured mice of PD with stem cell grafts and its just of matter of politics when it will tried on humans !!!Lets hope Bush doesn't screw it up with his religious pomp !I urge all of you to email (phone) your elected officials and voice
    • Hello all,Big *hugz* to all my old buddies and I h...
    • Hello all,Big *hugz* to all my old buddies and I hope to get to know all the new people here.I thought it was about time I graced this side of the world again.. I pretty much dropped out in amongst all the Sam rubbish earlier this year. I hope that you have all been keeping well.I have been doi
    • Is this pain normal?
    • Well first of all my moms friends daughter had lyme. And she found a dr. in mobile that treated her. So moms making me an appointment tommorrow :)!... Secondly pain. I have this wierd side pain. Its like on my hips/side...its like a wierd pain. Wondering if anyone has had this? My rash is
    • EMG test: standard ccs for measurement?
    • In terms of an EMG to determine neuropathy at the elbow, is there a standard centimeter distance normally (or customarily) used? If so, any comments on using 28 cc as against smaller distances?
    • My Upcoming Surgery
    • Well to give some background.12/16 I suffered a grand mal seizure which they believe is from some medication that I was taking (lowered the threshold of seizures). Anyway I had an MRI/MRA which showed a 4-5cm aneurysm. On January 24th I had an angiogram which confirmed this discovery. It is a
    • One Year Follow Up
    • Hi all. I went last week for my MRI's so they can compare them to my original MRI's from last year when this nightmare started. I have been on Avonex since October 2005 and up until recently i have had a hard time with the side effects. I keep telling myself if my tests show i haven�
    • Really Great Book on Lyme Disease...
    • Hi All - I have a three week break from school...ahhh...I can catch up with everyone. My family and friends have felt I have fallen off the face of the Earth since school started. Anyway, I got this new book. It is called "Healing Lyme...Natural Healing and Prevention of Lyme Borreliosis and
    • Interesting Facts About RSD
    • Hey guys I found this i thought is was a good thing to post, also there are 2 quotes at the end that i thought are really good too!! Have a good one!!Interesting Facts About RSDThere are an estimated over 7 million victims of RSD all across the USA.RSD strikes men and women but typically 75 per
    • HiIs anyone else out their on Trileptal? I have h...
    • HiIs anyone else out their on Trileptal? I have had seizuers since birth but started having PCS (Partial Complex Sezures) about 2 years ago. it seams to work but still have break throughs. My doctor has me on Ativan also.... When I have an aura (feel a sezure coming on) I put an ativan under
    • could this be ALS? please help
    • Hi,I am a 21 yr. old female, with generalized muscle weakness all over, especially in my thighs, but also prominent in my upper arms. I have a buzzing feeling most of the time throughout my arms and legs. When I go to bed, my legs sometimes feel like they are vibrating, twitching, or minor tre
    • sorry to go on need to talk...
    • I seem to be going through a particularly bad patch lately, I can't get to sleep till 2.00am, I've had vertigo in the mornings and I just feel awful. To top it I am trying to look after two pre-school children and be normal for them. I have adapted my routine to fit my health, but I
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